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SARCOIDOSIS RELATED EVENTS
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"Friends are angels who lift us to our feet when our wings have trouble remembering how to fly."
Hosted by Sandra Conroy -The National Sarcoidosis Resource Center
“ Sarcoidosis Awareness Weekend Celebration".
Come Join Us For A Spiritual And Educational Event
Aug 4 Sarcoidosis Benefit Gospel Concert 5pm
Aug 5 Sunday Morning Service 10:am
Held At
Zion Hill Baptist Church, The Rev. Leonard Hampton, Pastor
450 Highland Ave. Piscataway,, New Jersey 08854
Aug 6, Sarcoidosis Conference 6pm
Held At:
Embassy Suites Hotel
121 Centennial Ave. Piscataway,, New Jersey 08854
The National Sarcoidosis Resource Center is requesting your
present at our upcoming Sarcoidosis Awareness Weekend
Celebration hosted by Sandra Conroy. We are asking you to save these
dates for this spirited filled and educational event. The celebration
will kick off on Saturday, August 4 with the Sarcoidosis Benefit
Gospel Concert at Zion Hill Baptist Church located at 450 Highland
Avenue, Piscataway, NJ. The doors will open at 4:00 PM and the
concert to start promptly at 5:00 PM. On Sunday, August 5 at 10:00
AM please join us for morning service at Zion Hill Baptist Church.
The Sarcoidosis Medical Conference will be held at the Embassy Suites
Hotel, 121 Centennial Avenue, Piscataway, NJ on Monday, August 6th
at 6:00 PM.
Please
join your friends and neighbors in supporting the National
Sarcoidosis Resource Center Sarcoidosis Awareness Weekend Celebration
for this is going to be a blessed and wonderful event. Should you
require any additional information, please contact Sandra Conroy at
732.463.1381.
Sarcoidosis Awareness Celebration
Gospel Concert
August 4, 2007
Zion Hill Missionary Baptist Church
450 Highland Ave.
Piscataway, NJ
Doors Open At 4:00 PM
Registration
Name________________________________________________________________________
Address_______________________________________________________________________
City___________________________________________State__________ ZIP______________ Printable Gospel Concert Form
Mail registration form to:
NSRC
P.O. Box 1593
Piscataway, New Jersey 08855.
For more information, call (732)-463-1381.
Sarcoidosis
Awareness Celebration
Medical
Conference
August
6, 2007
Embassy
Suites Hotel
121
Centennial Ave.
Piscataway,
NJ
6:00
pm-10:00 pm
----------------------------------------------------------------------------------------------------------------------------------------------------
Registration
Name (please
print)________________________________________________________
Address_________________________________________________________________
City______________________
State________________________ ZIP______________ Printable Conference Form
Mail registration form to:
NSRC
P.O. Box 1593
Piscataway, New Jersey 08855.
For more information, call
(732)-463-1381.
DIRECTIONS
Zion Hill Missionary Baptist Church
450 Highland Ave.
Piscataway, NJ 08854
(732) 463-7776
New Jersey
Newark Airport / Northern New Jersey - Take the NJ Turnpike South to exit 10. Connect with I-287 North.... Take I-287 North to exit 9 (Highland Park and
Bound Brook). Turn left. Go approximately 1 ¼ miles and turn left onto Highland Ave. Continue on Highland Ave about a ¼ of a mile Church is on your left Make a
left turn onto the church parking lot.
Southern New Jersey / Philadelphia Area -Take the NJ Turnpike North to exit 10. Connect with I-287 North.... Take I-287 North to exit 9 (Highland Park and
Bound Brook). Turn left. Go approximately 1 ¼ miles and turn left onto Highland Ave. Continue on Highland Ave about a ¼ of a mile Church is on your left Make a left
turn onto the church parking lot.
Garden State Parkway North & South - Take GSP North to exit 127 or South to exit 129 and follow signs for 440 South / I-287 North (440 turns into I-287).
Take I-287 North to exit 9 (Highland Park and Bound Brook). Turn left. Go approximately 1 ¼ miles and turn left onto Highland Ave. Continue on Highland Ave about
a ¼ of a mile Church is on your left Make a left turn onto the church parking lot.
New York
Brooklyn / Southern Queens - Take Belt Parkway West to Verrazano-Narrows Bridge onto the Staten Island Expressway and follow Outerbridge Crossing signs).
Take Outerbridge Crossing onto 440 (440 turns into I-287). Take I-287 North to exit 9 (Highland Park and Bound Brook Turn left. Go approximately 1 ¼ miles and turn
left onto Highland Ave. Continue on Highland Ave about a ¼ of a mile Church is on your left Make a left turn onto the church parking lot.
Northern Queens / Long Island - Clearview Expressway, LIE, Northern State/Grand Central Parkway etc. - Take Throgs Neck Bridge to Cross Bronx Expressway
to George Washington Bridge. Follow signs to New Jersey Turnpike. Take the NJ Turnpike South to exit 10. Connect with I-287 North.. Take I-287 North to exit 9 (Highland
Park and Bound Brook). Turn left. Go approximately1 ¼ miles and turn left onto Highland Ave. Continue on Highland Ave about a ¼ of a mile Church is on your left Make a
left turn onto the church parking lot.
Upstate New York - Connect with and take I-287 South to exit 9 (Highland Park and Bound Brook)..Turn right. Go approximately 1 ¼ miles and make a left turn onto
Highland Ave. Continue on Highland Ave about a ¼ of a mile Church is on your left Make a left turn into the church parking lot.
New Research Study
Help us to
help you by joining our low-risk RESEARCH STUDY
to ultimately find a cause and cure.
WHO
GETS SARCOIDOSIS?
Sarcoidosis was once thought to be a rare condition. It's now known to
affect tens of thousands of people in the United States alone.
Although sarcoidosis can occur in persons regardless of their race,
gender or geographic location, it is more common among women and in
African Americans. In the United States, the risk of sarcoidosis is up
to twice as high in women compared to men, and three to four-fold
greater in African Americans than in Caucasians.
Sarcoidosis is mainly a disease of young adults, with onset between the
ages of 20 and 40 years old. Occurrence of the disease can also be
found in children and the elderly.
HOW YOU CAN HELP FIND A CAUSE & CURE?
To learn more about sarcoidosis and why some people are susceptible to
the disease while others are not, we are conducting a low-risk research
study involving patients with sarcoidosis and healthy individuals
without the disease.
If you have been diagnosed with sarcoidosis, you might want to consider
joining our research study. Participation includes up to 3 outpatient
visits, including one to determine study eligibility. Participants will
be given a set of self-administered questionnaires to complete, along
with a standard skin test of immunity and one to three blood draws.
No insurance is required. Study participants are reimbursed per clinic
visit.
To join this study, please contact:
Stephen Oliver M.D., Principal Investigator
212-263-3874
Stephen.Oliver@med.nyu.edu
http://gcrc.med.nyu.edu/sarcoidosis
WHAT
CAUSES SARCOIDOSIS?
No one knows yet what causes sarcoidosis. Some physicians believe that
sarcoidosis may result from a respiratory infection caused by a virus.
Others feel that exposure to toxins or allergens in the environment are
to blame. Most scientists do agree that sarcoidosis is a disorder of
the immune system, with some people vulnerable to getting the disease
while the majority of the population remains healthy and unaffected.
To make a diagnosis of sarcoidosis in a patient, the physician must
first exclude other, known diseases that may be similar in appearance
to sarcoidosis. For example, infections like tuberculosis, and certain
cancers, such as lymphomas, can mimic many of the signs and symptoms of
sarcoidosis. It is very important for a physician to thoroughly
investigate a patient before giving the diagnosis of sarcoidosis
because other types of diseases might require much different
treatments.
WHERE IN THE BODY IS SARCOIDOSIS FOUND?
As much as ninety percent of sarcoidosis cases are initially found in
the lungs. However, sarcoidosis can also occur in other organs of the
body at the same time or later in the disease course. Other commonly
affected sites include the lymph nodes, skin and eyes.
WHAT IS THE TYPICAL COURSE OF SARCOIDOSIS?
In most cases of sarcoidosis with little or no symptoms, the disease
disappears of its own accord, and no treatment is necessary.
If the lung sarcoidosis is severe, or if the disease spreads to the
skin or other organs, then there is a greater chance that the
sarcoidosis will become chronic and resistant to treatment.
The most serious outcome of chronic sarcoidosis is the development of
pulmonary fibrosis, where the lung’s tissues become scarred and
weakened. The end result is poorly functioning lungs, shortness of
breath and severe disability.
WHAT IS
THE TREATMENT FOR SARCOIDOSIS?
Physicians cannot cure sarcoidosis outright but they can treat the
symptoms of the disease.
Drugs called corticosteroids are the most common treatment used in
fighting sarcoidosis. However, corticosteroid treatment has multiple
side effects and may fail to adequately alter the disease course.
Other drugs that have also been used with varying success to treat
sarcoidosis include methotrexate, cyclophosphamide, retinoids,
hydroxychloroquine, and thalidomide. These drugs also have side
effects.
New and more effective treatments need to be developed through medical
research to control, or perhaps even cure sarcoidosis.
New
Jersey Medical School
UMDNJ –
University
Hospital
150 Bergen Street
Newark, New Jersey
07103
Dr. Stephan Schwander (principal investigator)
and Dr.
Matthew Marin (co-investigator) of New Jersey Medical School have been
awarded
a National Institute of Health grant entitled “Pathogen Specific
Immunity in
Sarcoidosis.” They are studying adult
patients, suspected of having Sarcoidosis involving the lungs, who have
not yet
received specific treatment for their illness.
At the time of initial diagnostic testing for Sarcoidosis
(bronchoscopy) the investigators are
performing lung
washing (broncoalveolar lavage) to
obtain lung cells for their studies of the causes of Sarcoidosis. For more information relating to this
investigation, contact Dr. Matthew Marin (973-972-6111) or Dr. Stephen
Schwander (973-972-1171)
THE NATIONAL SARCOIDOSIS RESOURCE CENTER
LAUNCHES RIBBON CAMPAIGN
200 years has past, and sarcoidosis is still cloaked in
mystery, misunderstood, and an
enigma to the medical community. This multisystemic disorder
masquerades as many
other illnesses, and may affect more than one million people in the
United States. It has
never been the subject of a network telethon or the focus of a major
federal initiative.
Sarcoidosis often means a lifetime of medical problems, and
disabilities, including the
possibility of a heart and / or lung transplant. There are many people
dying from the
complications of sarcoidosis.
In our continuing efforts to promote public awareness, the
National Sarcoidosis
Resource Center is proud to announce the launching of its ribbon
campaign.
For $1.00 donation, you will receive a beautiful purple ribbon
imprinted with
"Sarcoidosis Awareness."
We are committed to see that sarcoidosis receives the recognition
it deserves.
As these lovely ribbons are worn, awareness will increase.
We urge you to get others involved. For additional information, write
to the:
National Sarcoidosis Resource Center, P. O. Box 1593,
Piscataway, N. J. 08855-1593
RIBBONS
All ribbons are imprinted with Sarcoidosis Awareness, and
available plain or with ornament.
Plain___ Dove____ Bible____ Rose____ Prayer Hands____
